ACP Day - Conference feedback

Advance Care Plan Day - Conference feedback...

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Conference - logistic news & book ordering

Getting your House in Order, Conference News & Book reservations

Date: 8th May 2024 Location: John Innes Centre. Please see programme attached with times and schedule of the day.

 

The UK's First National Advance Care Plan Day has been announced, it will be held on the 8th MayPlease 

 

PARKING IS ON A GRASSED AREA VIA ZONE 2 "STEVE VISSCHER WAY" FROM HETHERSETT LANE ENTRANCE

*For Satnav please input "Norwich – Hethersett Lane"*

To attend in person (for free) or to receive the live stream (for free) click here

 

Hope for the best and plan for the rest

 

The authors of the book "Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis" will be signing copies at the Conference.  

To pre-order your copy please make a minimum payment of £14 to N&N Hospitals Charity via Paypal, by clicking on this link and press 'send' at Buy Book.  If you wish to include an additional donation, that extra amount will be used to support Palliative Care at NNUH.

Please note that book pre-orders MUST be completed by 23 April 2024.  There will not be additional copies available to purchase on the day of the event.

 


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This website was made with love and care by MyWishes, Michael Sobell Hospice, Gate 3, Mount Vernon hospital, Northwood HA6 2RN, United Kingdom


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ACPDay in the British Medical Journal's SPC

ACP Day 2024 featured in the BMJ's SPC

Thank you BMJ SPC for featuring us on the Supportive Palliative Care section of the publication. 


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ACP Day 2024 - Press Release

A national day highlighting the importance of
Advance Care Planning

On the 8th May the first national Advance Care Planning day will take place in the United Kingdom. This day of action and awareness will highlight the importance of Advance Care Planning and encourage society to document, share and discuss their wishes. 

 

There are a number of ways in which the general public and professionals can get involved ahead of the national day and on the day itself.

 


Download the Press Release

The new Advance Care Plan Day website (www.AdvanceCarePlanDay.org) contains information about the different aspects of Advance Care Planning and asks visitors to make and share ‘pledges’ about the Advance Care Planning tasks they intend to undertake. Visitors are also able to help empower others to learn and participate by sharing prompt cards outlining the different aspects of Advance Care Planning.  Through education and social participation, it is hoped that an increased number of Advance Care Planning tasks such as documentation and important discussions across the UK will take place.

 

Those wanting to submit their own Advance Care Planning stories (both good and bad) are encouraged to share them for publication if they wish to do so.



The first two Advance Care Plan Day, ‘Getting Your House in Order’ podcasts are now live. Registration for the ‘Getting your House in Order, Advance Care Planning Conference’ is now open. This hybrid conference will take place with a live audience in Norwich and streamed live on the 8th May. More than 20 health and social care organisations across the globe have already received the streaming link in order for it to be watched live at their place of work.

Charitable organisations working within relevant fields are encouraged to be listed as a ‘supporter’ for this year’s national day of action and awareness.

About Advance Care Planning

Advance Care Planning is a voluntary process where someone thinks about and makes plans for their future health, social care and wider wishes. An Advance Care Plan can be one or more documents that express someone’s future health, social care and wider wishes.

 

The vast majority of adults in the UK have not created and shared one or more Advance Care Planning documents. The aim of the awareness and action day is to help change this. Making plans in advance can be of great benefit whilst someone is healthy, when they are unwell, for care professionals and for the person’s friends and family members in the future.

Information for editors to use

Download the press release

 

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We have launched on Twitter (Sorry, we mean 'X')

ACP Day on Twitter: #ACPDay2024

ACP Day 2024 is now on Twitter (we mean 'X'... Join the conversation over the weeks head by visiting @ACPDay2024

Feel free to tweet any of the resources provided and using the hashtag #ACPDay2024
Tweets by ACPDay2024


Speaker Announcement: Zoe Harris

Future care planning made easy

Zoe Harris traces the journey from a simple wall chart to the development of the My Future Care Handbook, a comprehensive resource aimed at facilitating personalised future care planning for individuals as they approach later life. Using personal stories about caring for her late husband living with advanced dementia, and then for her late mother, Zoe highlights the pivotal role of sharing essential information to enable quality care and humanising the healthcare experience.

The evolution of the wall chart into the Mycarematters profile, a digital platform for documenting needs and preferences, underscores the importance of accessible and comprehensive information in healthcare settings. Zoe emphasises the need for early engagement in advance care planning, dispelling misconceptions and stigmas surrounding discussions about future care and end-of-life preferences.

Drawing from extensive research and feedback, the My Future Care Handbook is a user-friendly guide covering all the topics we should consider as we approach later and end of life. Through colour coding and QR codes linking to online resources, the Handbook provides a structured approach to navigating complex decisions. Real-life examples and case studies illustrate the impact of the Handbook in empowering individuals to take an active role in their care journey.

Recognising the challenges of navigating care planning alone, Zoe introduces the Buddy Service—a support programme designed to assist individuals in developing personalised action plans using the Handbook as a guide. The success of the pilot programme underscores the value of tailored support in facilitating informed decision-making.

Expanding beyond individual support, Zoe discusses the importance of collaboration with organisations and community groups to reach a broader audience. Through training sessions and ongoing support, these partnerships aim to equip staff and volunteers with the necessary skills and confidence to initiate and facilitate meaningful conversations about future care planning.

Zoe emphasises the importance of community support in empowering individuals to make informed decisions about their future care. By fostering a culture of proactive planning and open dialogue, the My Future Care project seeks to enable people to retain / regain a sense of control over their lives, live their best life possible and experience a good death.


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Speaker announcement​: Tommy Whitelaw

Speaker Announcement: Tommy Whitelaw

Tommy Whitelaw will be talking about why asking What Matters Most to you is so important and the impact it had on his Mother’s care.



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Advance Care Plan Day - News

Speaker announcement

What is CPR?

https://vimeo.com/754707778

Ethical and Policy Dilemmas in (DNA) CPR Decisions: Results from the Autonomy Project Audit.'

Abstract:   One part of planning for future care is the difficult matter of deciding about "ceilings of care," including with reference to the use of so-called "heroic measures" for the preservation of life.  In recent years, the pandemic shone a bright light on so-called DNACPRs.   

"DNACPR" is an acronym; it stands for "Do Not Attempt Cardio-Pulmonary Resuscitation."  In this presentation I identify and dispel some widespread misunderstandings about DNACPRs, about their function and legal status, about their appropriate use and their too-frequent misuse.  

I introduce some educational tools designed to foster better understanding of the issues among care-professionals, care-recipients, and families.  And I draw attention to some of the shortcomings in existing guidance for care-professionals.


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